Bluebird,

I can't tell you how much it has meant to me to hear someone say what this is really like...7 years out and the pain is exactly the same as diagnosis...it will never end and I too want to die in my sleep...or any quick way possible

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Apple,

I'm sorry, I didn't see this post until today.  I'm sorry you are in this hell as well.  I'm glad if my posts have helped you at all. I went back and read some of the posts you made on my thread around this time last year, and then I read some of my responses and those of other people.  Nothing has changed.

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