Comment

Comment by Dick on March 18, 2012 at 10:45pm

I am OK everyone. My 7 months came and went on the 14th.

Comment by Karen R. on March 18, 2012 at 7:28pm

Just want to say that I feel so connected to all of you guys, I know that there are many other online sites such as this but this one has something that always draws me here.......it could only be you guys. Thanks for not judging me. Sending many, many hugs to you all.

Comment by Karen R. on March 18, 2012 at 7:24pm

Hey Adrienne, I was just thinking the same thing about Dick, i hope that he is alright.  I wonder if anyone has any other contact info for him..

Comment by Adrianne Edgerly on March 18, 2012 at 5:47pm

Been worried about Dick. Hasn't been on here much.

Comment by Stephanie on March 18, 2012 at 1:38pm

i know adrianne, i know. all those parts of him are still in you. how sore it is. how do we bear it? i dont know, but we do!  just like the pain we never knew existed, so we discover strengths in us we never knew existed. otherwise we could not bear it. maybe they're glad to see that we develop these strengths. one day we will understand, one day...... ((hugs)) steph

Comment by Adrianne Edgerly on March 17, 2012 at 1:57am

7 months in just a few minutes. 7 months of not seeing or talking to my son that I saw and talked to more than anyone else. It hurts in places I never knew existed. I want to rewind and go back. I didn't lose the grown man. I lost the baby, toddler, boy, teen, and adult. I want to remember it all but without this pain.

Comment by Grace on March 16, 2012 at 9:23pm

My other son just told me he dreamed about Niles...mainly he was snuggling and hugging him.... he said it was not bad having such a dream... infact he was kind of ok dreaming this dream about his brother... I guess it makes me feel not so alone to know that others also dream of him and then reality of him not being here any more.

I don't know why this kid has been in my brain so much... everywhere like the compassionate friend writing posted earlier....  I look at kids his age and think he would be..... age or today I saw on a school bulletin board footprints... and it reminded me of the hospital making his footprint and handprint after declaring he was brain dead..... just things that keep him at the top of my thoughts.  and it will be 3 years in May....

Comment by Stephanie on March 16, 2012 at 7:01pm

thanx grace, we have an extra connection because of the "disabilities" our kids had. its so so hard.  strength to you special friend. you are an online friend, but probably the closest friend i have in this painful situation xxx

Comment by Grace on March 16, 2012 at 5:57pm

HUGS Stephanie... I know the feeling...

Comment by Stephanie on March 16, 2012 at 5:48pm

hello dear friends. my daughter had CP - she was dependent on me for everything - physically. and even verbally i was the only one who could understand her. but her mind was so alive and bright, she was so festive and loved to shriek and "clap" to birthdays and celebrations, to songs and play. she really really battled though.  her 4th angel date is coming up on 24 april. i have been craving to see her, so for the first time - maybe in almost a year - i just watched some video of her - i cried bitterly bitterly bitterly. how she suffered, how she fought, how she and i loved each other.  of course it hadn't helped also just having watched Lorenzo's Oil on TV.  dont know if any of you have seen it. but when my daughter was at her worst stages, she was a bit like that.  ive now cried so much my head feels like its going go explode from pain. ive taken some pain killers.  she passed when she wsa 12. our life revolved around her needs, and entertaining her. i'm sad for the hard life she had. and im also sad she passed on. what terrible terrible pain. will i survive it?

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