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Comment by teri marie on May 17, 2012 at 5:53pm

mercy the pain.....no one can even imagine

Comment by Grace on May 17, 2012 at 5:42pm

Michelle and everyone.... the Brain lady was kind... we talked about Niles as if he were alive... so sad that reality is that he is not.....what a hard week.....  I can relate to you Michelle.... he SHOULD be graduating.... PEACE everyone.... especially us that have that damn calendar curse.... 5/27/2009   Date of Death ......

Comment by teri marie on May 17, 2012 at 4:26pm

michelle w.~ enjoy the event i am sure he will be with you.  he sounds like a wonderful boy......

Comment by Michelle W on May 17, 2012 at 4:09pm

Our children are a beautiful thing, and if other don't see them the way we do then they can just not get the timd of day.. I will be going to my sons graduation this week , of course he won't be there physically but I know if there is any spiritual hope he will be there.. The school would like to down play his existence , because that would be the best for the others... I guess they don't understand this is my last school event I will be attending for him... Hello I lost my son to a school event.. Give my son his day ..,,, he was going to college and he was in all the ap classes... He spent spare time tutoring classmates after school.,,just because,,,,I'm sad and mad ...,

Comment by Grace on May 16, 2012 at 5:15am

Even dogs who are kicked and abused want the person to Love them... and even children hope to win a parents approval... and we have all heard that God wants us to Honor our parents..... But I guess I'm gonna go to Hell because if God forgives these folks for Hateful evil.... maybe I'd rather sleep forever than awake to sharing eternity with them...

Comment by Adrianne Edgerly on May 16, 2012 at 1:19am

Lynne
Your child was/is a gift. Labels like autism or bi polar or manic don't identify our children. Our love for them is the same any parent would have for a child.

Comment by Adrianne Edgerly on May 16, 2012 at 1:15am

Grace
I can't imagine this kind of abuse. I'm so sorry. I don't think it's in your best interest mentally to listen to these comments any longer. It really upsets me.

Comment by Grace on May 15, 2012 at 7:18pm

Well it has been one hell of a couple of weeks..... my family telling me I should have aborted my deceased son... and filling out papers to describe my son almost 3 years after his death because we donated his brain to the Autism Tissue Program to help research Autism and Epilepsy.... I meet that woman tomorrow as she has flown in from Pittsburgh to our small town just to interview us and give us some information about what they have learned so far from my Niles brain... Bittersweet... his death gave people life through organ donation and his brain may unlock the mystery of Autism... Our benefit has helped give about $9000 to others still living with special needs or medical crisis.... Complete strangers apprieciate my Niles... and yet my own brother with my Mother silently and emotionless observing my brother telling me that I should have aborted him!   He claims I knew he would have "Something Wrong" with him and yet I had him anyway...... that was not true... but even if it was My Niles Life was valuable to me and for them to say these thing just says the 14 years of his life was meaningless!   I just still can't believe it... but I do know that through all of these years and especially through all of this pain we all have to live with that I MUST Cut them out of my life.  It is sad but I can not forgive either of them.  And for years I have always tried to reconcile because my Mother is Older.... But I just can't do it anymore.  And I feel not much support from my other siblings who will try to swoop in to be her favored child.... it is absolutely sickening how we try our best to be "Good" and still want acceptance and love from family.... I think I am a fool for trying to want that..... It is time I cut lose from them.

Comment by Karen R. on May 15, 2012 at 5:39pm

To Grace and all others that had a similar experience with family members, as I read some of the recent postings, all I could feel is a overwhelming shock that turned into anger and sadness. I can not imagine having my family treat my children or me as a outcast....to say the least. How incredibly hurtful and cold. None of my children had special needs but I have close friends who do have such children. The bottom line is that we are all human, we all bleed and breathe the same way. We never know what we will be dealt in life, did any of us know that we would be dealt such a tremendous loss and pain? I have never heard of something so cold. All I can say is shame on them and it's their loss that they never developed a love and bond with your children. If it were me, I would have no problem of cutting them off.

Comment by Karen R. on May 15, 2012 at 5:29pm

Hey Ammy,  thanks so much for your support and your "hug".....felt good.

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