Comment

Comment by Grace on January 6, 2013 at 9:23am

The rose was placed in the lower pink area of the heart and this was the front of the float.    again... it feels so good to know he has not been forgotten...

Comment by Grace on January 6, 2013 at 9:21am

Comment by Grace on January 6, 2013 at 9:18am

This rose below was placed on the Donate Life Float for the Rose Bowl Parade by Niles Heart Recipient....

Comment by Grace on January 6, 2013 at 9:17am

Comment by Lorraine on January 5, 2013 at 9:10pm

so good to visit here where people understand. I am thinking of moving out of my apartment into another place where I can share expenses with a friend. I need to do this, however, my apartment is where I took care of my son Silas when he was sick with cancer. He installed the tv on wall of bedroom I have slept in since he passed on. I still have frozen corn dogs in the freezer from when he was going through chemo. I feel like a crazy woman; I can't imagine packing everything up and leaving here. It feels like loss all over again. Has anyone else experienced this? sending hugs to all

Comment by Ammy on January 5, 2013 at 5:55pm

Grace, if anything good can come from our losses, I am happy you got to feel this love from the recipient of your son's heart.  It doesn't take away your loss or your grief, but you are so right when you say that Niles' life was of value.  All our children had value.  I don't care who they were or what they accomplished they were of value.

People just don't get it and I don't think they ever can unless they some day walk in our shoes and stumble along our path.  

I feel blessed reading your post.  Thanks for sharing and I'd love to see the pic.  Maybe you could post it here.  God bless.

Comment by Adrianne Edgerly on January 5, 2013 at 4:34pm

So many sad stories. Grace I think your rose story is such a bittersweet one. But I think what you did was amazing.

Comment by Grace on January 5, 2013 at 3:39pm

May 2009..... Niles died..... and he was 14 and No .... I am not  "Over It"  I move forward but I still slide back.   I smile and laugh but there are still plenty of days I will fall apart and cry.   It amazes me how IGNORANT people can be in making such cruel comments.  I have had many.... many from my own mother.... and siblings.   I have not spent time thinking about the holidays... trying NOT TO EXPECT Merry or Happy..... Just trying to count off the time....while I still go through the motions....

This year the Heart Recipient of my son's heart facebooked a photograph of the Rose Bowl Rose that was placed on the Organ Donation Float.... It was such an honor to have her Remember and Honor my Son..... I posted it and got more comments from her friends and family than I did mine.... it was like all my folks thought if they were silent then I would not hurt so bad..... instead I just feel like everyone wants me to forget I even had a son..... Well I felt so loved and respected by his heart recipient....  and I watched the parade (I normally don't pay attention)  and only a distant few of my folks made minimal comments.... when My husband and I saw the float..... yes  I cried.... is that so wrong to feel so moved that someone valued the existence of the life of my Niles?     This wound never heals....just maybe scabs....but can easily be re-opened.

Comment by Sherry Ray on January 5, 2013 at 12:58pm

Hello everyone. It has been awhile since I have wrote but have kept up with reading everyone's post. The holiday's have come and gone but still so many 1st coming since losing my daughter and granddaughter. Day to day seems to becoming more of a struggle. Seeing my son over the holidays helped but when your family ignores the pain you are in and says it is time to move on is worse.  Can they not understand this wound will never heal.

Comment by Karen R. on January 5, 2013 at 9:01am

I feel like like you do Sophia, this is beyond sad.

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