lost of child from genetic disaese's

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lost of child from genetic disaese's

a place to come find people who know what your going through. a place to make new friend.

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Latest Activity: Dec 18, 2016

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Comment by Paula Baker on January 28, 2013 at 7:04am

My 20 year old daughter passed away on 6th January 2013 from Juvenile HUntington's Disease.This is a degenerative terminal illness which she had for at least half of her life. :(

Comment by cheycheysmommy on July 16, 2010 at 1:11pm
im new and started this because i lost my 2 year old daughter to a genetic disaese called- Melas Syndrome. please if anyone has lost a child to any kind of disaese's please join so we can start making new friends and if you want we can share of children storys.
 

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Does anyone else feel pressure to always reply because you're afraid it'll be the last conversation?

Hi everyone. This is my first post here.I lost my brother in December 2024 to an accidental overdose. He passed away suddenly in his sleep. We were only a year and a half apart in age, and he was the closest person I've ever had.One thing I've been struggling with ever since is that I feel an overwhelming pressure to reply to texts and answer calls as soon as I can. If someone messages me and I don't respond right away, my mind starts thinking, "What if something happens to them before I reply?…See More
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Willy replied to Rosa Guzmán's discussion Grandma sewing room
"Hi Rosa, First, I am so sorry for the loss of your grandmother. Losing someone you love only two days ago is incredibly painful, and it’s understandable that you’re feeling unsure about what to do right now. Personally, I don’t…"
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