dearest grace, i dont know if we ever spoke before, but i think WE CAN BE REAL FRIENDS.  i lost my daughter who had cerebral palsy, in april of 2008.

the pain - i know, i know, i know, i promise.  jessy also had seizures.  and there is something we have in common, not just having lost a child, but a child with special needs.  there is such a different kind of attachment we have with these children, which i think no-one can appreciate.

please write me any time on sentimentals@absamail.co.za

and then i'll give you my facebook name

and you can see all about jessy and me there.

and i would love to hear about you and your son, and share our very very deep pain.

lots of love, janice

Grace, your foundation sounds like a wonderful tribute to your son.  I too have started an organization in memory of my Silas ~ http://www.sysfund.org.  We help young adults with cancer by funding meaningful gifts and integrative therapies.  It does not make the pain of losing Sy go away, but it does help to know that I can pay my son's generosity forward.  My thoughts are with you~ Lorraine